After he left I was chatting with another mom and she said that her son (4) was asking why Aidan was crying. Why he seemed more like a baby than a three-year-old. She wondered how she should talk about Aidan and Down syndrome with her son....my response was, "I really don't know." I honestly don't know.
And I don't think I'm alone. This seems to be a struggle for parents of children with Trisomy 21. How do we describe Down syndrome:
1. without being overly technical?I'm on a bit of a mission to find answers to these questions. My inquiring mind wants to know: what are your thoughts on the best way to describe Down syndrome?
2. with respect to our child?
3. with honesty (yes he's different - difference isn't a bad thing though, right?)?
4. without making a big deal out of it?
5. to our own child once they're old enough to understand?
Incidentally, one mom in our local Down syndrome group said she talks to her son's class every year about Down syndrome, but now her son is adamant that he does not have Down syndrome. She's wondering what to do now.
Also, I asked Kieran how he would describe Down syndrome to a four-year old, and he didn't know either.