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13 hours ago
"Keep it simple. When a child asks how a car works - all they usually need/want to hear is that the motor makes it go. You don't have to go into pistons and fuel and all the nitty gritty. Usually they're happy with a simple answer. So, Aidan acts younger because he has Down syndrome. He's learning things on his own time."
1. without being overly technical?I'm on a bit of a mission to find answers to these questions. My inquiring mind wants to know: what are your thoughts on the best way to describe Down syndrome?
2. with respect to our child?
3. with honesty (yes he's different - difference isn't a bad thing though, right?)?
4. without making a big deal out of it?
5. to our own child once they're old enough to understand?
Tip toe, tip toe, tip toe, tip toe.
Who's that knocking at my door.
Could it be a __________ (ghost, mummy, witch, monster, black cat, etc.)?
Run, run, run. Run, run, run.
You'd think after 6 years I'd learn to grow some thick skin and not let things like what was said bother me, but this one just cut me to the core.
I've heard "suffers from Down syndrome" enough to become mostly immune to that ... although it does still irk me because Kayla is not 'suffering.'
But this one was something else, the commenter said: "...my belief that Down's is a cruel and unusual sentence to visit on a child."
Did I really just read that? Cruel and unusual?
Then there was this: "Far more Down's children live miserable, suffering lives than these individuals want you to believe. Viewing the lives of affected children, and simple education tells me that I could never force a child to endure what they would should they be born with Down's."http://mdbeau.blogspot.com/2009/10/cruel-and-unusual.html
Hey Carol, this post struck a chord with me. I read The Memory Keeper'sOkay, now my heart isn't quite that heavy. There's a whole classroom of middle school kids who are a little wiser for having met Aidan. Thank God for that.
Daughter this summer (on your recommendation) and then the other day in science class my kids and I were talking about genes and from there we started talking about different genetic disorders, down syndrome, you and your family and how people used to put people with down syndrome into homes. My kids were quite horrified with that idea. They all remembered Aidan and couldn't believe that
anyone would have ever done that. Hope your Thanksgiving is going well!